Meeting With Eurordis Members, May 5-6 2006

More than 180 representatives of rare diseases patients organizations met in Berlin on May 5-6 2006. The program of the meeting consisted of the organization of the Annual General Assembly and the Rare Diseases Conference, with 3 workshops:
- reference centers
- data bases and patients registries
- research projects organized by patients
We had the opportunity to meet organizations from all Europe and to participate to a cocktail dinner hosted by Mrs. Köhler (The First Lady of Germany) at Bellevue Castle in Berlin.