Meeting of the National Alliances Council Eurordis – Paris

During October 29-30, Dorica Dan – President of ANBRaRo participated to the Meeting of the National Alliances Council, in Paris.

It has been analysed the actual status of the national plans, the organization of national conferences related to the national plans, planning of the 2013 Rare Diseases Day, translation at the national level of the Directive concerning the rights of the patients on the trans frontier medical assistance. There have been presented the first results of the research concerning the off -label medicaments utilization in the treatment of some rare diseases, EUCERD actions – Europlan, specialized social services, Expertize Centres and the qualitative criteria for their nomination, reference networks for rare diseases, also other Eurordis projects .

Dorica Dan, RPWA President