Rare Disease Day 2012

At European level, Eurordis in partnership with the European Commission organized on Rare Disease Day a symposium with the theme European Model of Solidarity in rare diseases, to show the successes from the last decade and the key future actions. The event was held at the Residence Palace in International Press Centre in Brussels.
Among participants we can enumerate patients and patients' representatives, researchers, health professionals, members of the EU Committee of Experts on Rare Diseases, European parliamentarians, senior officials from the European Medicines Agency and the European Commission and representatives of the pharmaceutical industry and biotechnology .
The meeting highlighted the value of the actions to address at  EU level in the field of rare diseases and demonstrated that Eurordis initiatives in partnership with the European institutions have a positive impact on the health of all EU citizens and is a model that is extended also outside the EU.
The symposium was attended from Romania by Dorica Dan - President ANBRaRo, Dan Tiberiu - Executive RPWA Mrs. Monica Hercus - Advisor Ministry of Health and Mr. Stefan Staicu, Health Attaché at the Permanent Representation of Romania to the European Union.
 
Data: 
Wednesday, January 11, 2012